Hear from women living with endometriosis

Learn something new, and see how you can share your own story.

A letter to women with endo

All right, bear with me, ladies, I might get preachy. (I’m 59 years old, so I’m allowed these things.) Please educate yourselves on your treatment options for endometriosis pain. I was given a total hysterectomy when I was ONLY 22 years old. That means the doctors removed my uterus and ovaries to help relieve my pain. It’s a complex surgery, but I had a terrible case of endometriosis. By the time I had that hysterectomy, lesions had spread to my colon and bladder. I was in So. Much. Pain.

I don’t regret getting the surgery, but I wish I had known more about my treatment options. I might’ve not gotten a hysterectomy at that age. The problem was that nobody talked about endometriosis at the time. I would say, “Doctor, it feels like my insides are falling out every time I take a step.” He would sympathize, but had no idea how terrible the pain was.

My advice? Be honest with your doctors and speak up! It’s not like they haven’t heard it before. Remember, it’s your health, your body, and your peace of mind—nobody else’s.

This story was submitted by a real woman and reflects her personal experience. It does not reflect AbbVie’s thoughts, opinions, or beliefs. Before making any changes to your treatment or lifestyle, consult with a physician.

We’ve noticed that you’re interested in stories related to “Speak up”. Check out some of these: