Hear from women living with endometriosis

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Hear from women living with endometriosis

Read personal stories from women with endometriosis and get tips for living life with endo.

She decided her health was more important

I’d been living with endometriosis pain for years. I’d tried so many doctors and treatments. I’d missed work and important social events. But when I found out that my rectum was adhered to my uterus, ovary, and fallopian tubes, that’s when I hit my breaking point. That’s when I finally decided it was time to take back control from this disease and find the help I needed.

For background, I live in a city where doctors who treat endometriosis are few and far between. The ones that are in my area don’t focus on endometriosis pain. I remember leaving their offices sobbing—feeling so misunderstood. They kept asking me questions about things that aren’t a priority for me, like my fertility. I wanted them to pay attention to the pain I was in.

Thankfully, I happen to have a close friend who is a nurse practitioner. About 6 years ago, she got me in touch with one of the leading endometriosis researchers in the country. The researcher reviewed my case, and referred me to practicing gynecologists who specialized in endometriosis. They recommended a surgery that would remove my uterus and lesions that had then spread to my bladder, appendix, and lungs.

While some of the pain has returned since that surgery, it’s more manageable. I strongly encourage all patients to take control of your health. If your doctor isn’t listening to you, move on to another one who will support you. They are out there, I promise!

This story was submitted by a real woman and reflects her personal experience. It does not reflect AbbVie’s thoughts, opinions, or beliefs. Before making any changes to your treatment or lifestyle, consult with a physician.

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