Hear from women living with endometriosis

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Their biggest supporters

Endometriosis can seem lonely for some women—as if they’re the only one experiencing it. It’s important to know that your feelings are valid. There are people willing to listen and help, even if they can’t relate. When asked who their biggest supporter was during their experience with endometriosis, women gave a range of responses.

Mothers
“I would have to say my mother—she’s been there since day one,” Krystle (diagnosed 2008) says. “She’s heard the complaints and me crying in the middle of the night. She’s the one that would come into school and bring me a set of clothes and take care of me when I was sick in bed.”

Danielle (diagnosed 2008) agrees, explaining that her mother even went to appointments with her. “My mom took notes so that I could read her notes and she could remind me of what we talked about and the things I had to do.” Her mother even spoke up for her as a helpful second voice. “My mom piped up at the doctor’s office and said, ‘Doctor, she is not a complainer. She has always had a high tolerance of pain. If she is complaining about her pain, then she really is in a lot of pain; probably more than most people would be.’”

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Significant Others/Friends
“Definitely my husband,” Anne (diagnosed 2010) answers. “He’s been there the whole time—he’s seen me at my lowest. He has pushed me, at times, to speak up and say, ‘Something’s not right, we need to work on this.’”

Anne has been lucky enough to have 2 important people by her side. “I have a more recent friend, within about the last 5 years, and she’s been my female sounding board. [I tell her] ‘I’m not feeling good today,’ and she’s the one that’s like, ‘All right, let’s go do this.’”

Extended Family
Along with her mother and husband, Meghan (diagnosed 2016) talks about how supportive her nephew has been. “My nephew, who is in college, was even messaging me, ‘Do you need anything? I can bring you food,’ because he is at college right down the street from where I live. My family is super close. They all drop everything to help each other.”

Talking about anything period-related has been labeled as “taboo.” Break down the walls, speak out, and start inspiring others around you. SpeakENDO encourages women—like you—to speak out about all of your symptoms, whether it’s to your mother, significant other, best friend, or most importantly, your doctor.

Looking for videos from other women with endometriosis? Watch their stories